It was never going to be an easy time but the fatigue really caught me out. I’ve run a marathon before and the fatigue after that is absolutely a walk in the park compared. I think I felt because I was in good shape I would maybe avoid some of the fatigue, but this wasn’t to be. For around 10 days after I left the hospital I was pretty housebound, at times I literally couldn’t move – dad had to at times rescue me on the stairs because my legs literally wouldn’t move me. There’s no words to describe it, but it was hugely frustrating to be unable to do literally anything at times. It’s all so frustrating.
I’ve had 2 chemo boosters, they were just administered at the hospital as an injection and I then went home. I was told that there is a 1 in 7 chance of having a reaction to the booster, and if I was to run a temperature (above 38 degrees) it was to be ignored on this day. In normal circumstances if I ran a temperature I had to immediately go straight to hospital.
Anyway, so I had a reaction, gah, not ideal. Ran the temperature and felt absolutely horrendous that evening, staggering about and struggling to function. The worry was that although I’d been told it would be a reaction to the booster, what if it was just coincidental and was something else. After a stressful evening by the morning it had cleared and I felt more normal. Phew!
Side effects overall I’ve been very lucky, I’ve had a constant ‘hangover head’ which has given a kind of brain fog that hasn’t gone away. This was really bad for those first 10 or so days and has now cleared a little, but there is no escaping it. The hair loss started a few days ago and over the last day or so has got a lot worse. I had my hair cut gradually shorter, but my scalp these last few days has felt on fire, like I’m getting needles stabbed in it. Shave it off real short – helped a lot!
Tinnitus, the fatigue, mouth ulcers, hair loss and the weird metal taste as side effects but aside from that I’ve been very fortunate. I feel awful but it could be a lot worse.
April 25th, next cycle starts on 27th April. 1 down, 2 to go!